Last night was not the greatest of nights.
The “little one” (as he gets called in this house) was restless all night with an upset tummy. I have no idea what caused it.
I have forgotten to mention in other posts that not only does he have CF, but he is lactose intolerant…or dairy intolerant? It hasn’t been 100% figured out yet as soy is the only thing he can tolerate. Over the course of, at least, six months, we have tried goat milk, oat milk, rice milk, lactose free milk etc. You name it, we tried it. Soy is the only thing he can tolerate.
It started off not being able to tolerate milk, but once we figured out about the soy, that was fine. Then he couldn’t tolerate cheese, then yoghurt. We have him settled on all soy products now (but OUCH!!! It’s pricey!)
About 2 months ago, he stopped tolerating chocolate as well, so he is chomping down “Sweet Willy Dairy Free” chocolate, which was actually recommended to us by one of our cleaning clients, whose daughter also has allergies. It doesn’t taste too bad, kinda like a cheap, almost dark chocolate you get from the stingy relative at Easter.
He is still able to tolerate regular dairy butter, at this stage. He is also able to eat processed foods that have milk in them (this kid could seriously give the cookie monster a run for his money!!) But he isn’t much of a cake eater….cake is for smooshing!
It has made life interesting trying to boost the fat in his meals as soy doesn’t quite have the same fat content as dairy. The last time we saw the dietician, there was talk of getting some sort of additive to help boost the fat content of the soy, but they were wanting to do a bit of research, as most of the ones they prescribe are dairy based. I think at this point, they aren’t terribly concerned, unless his weight drops. At the moment he is staying fairly steady between the 45th and 50th percentile for both weight and height…which I’m pretty happy about. Apparently height can be stunted, and older CF-ers tend to be a bit scrawny (but remember, they have only figured out the high fat diet in the last 5 years ago, so “the young one” should never be like this)
But having dairy has the same effect as not giving him his enzyme tablets before he eats (those little “goodies” that help him digest his food), he becomes grumpy, then bloated and gassy, then loose. Not a pretty picture!
But last night…I honestly don’t know what was going on. He becomes loose at the drop of a hat. But he had only pooped once all day (sorry…too much information again, I know!) but was bloated, grumpy and his tummy was grumbling like crazy.
It was probably 10pm before I could successfully get him to bed, and had to get up to him every hour or so. When he gets like this, there is next to nothing we can do for him except give some pain relief and hope it works. Last night he was lucky, we happened to have some Pain Stop (for non-Australian readers….its a ripper pain-killer!!!) for some dental pain my partner and I have had (don’t worry…its ok for children!)
He has been grumpy today, a little more argumentative than usual for the little red-head (Trust me, he has the temper to match the colour!)
I don’t know if he ate something he shouldnt have, or if I messed up his medications somewhere along the line. CF sufferers can get constipation easily, but that’s not the young one’s style….he tends to go the other way, so neither of these theories really make sense.
Im just hoping it not some sort of bug :-S