- Cystic Fibrosis (CF) is the most common life threatening, recessive genetic condition affecting Australian children.
Symptoms can include poor weight gain, troublesome coughs, repeated chest infections, salty sweat and abnormal stools.
Cystic Fibrosis is a genetic disease that affects a number of organs in the body (especially the lungs and pancreas) by clogging them with thick, sticky mucus.
Repeated infections and blockages can cause irreversible lung damage and death. Mucus can also cause problems in the pancreas preventing the release of enzymes needed for the digestion of food. This means that people with CF can have problems with nutrition.
CF is an inherited condition. For a child to be born with CF both parents must be genetic carriers for CF. They do not have CF themselves.
In Australia, all babies are screened at birth for CF.
- At present there is no cure for CF, but the faulty gene has been identified and doctors and scientists are working to find ways of repairing or replacing it. One of the main objectives of the CFA Research Trust is to fund this work.
- With today’s improved treatment most people with CF are able to lead reasonably normal and productive lives. A great amount of time is being directed towards finding new and improved ways of treating CF and of finally finding a cure.
This information was pulled from the CF Australia website. They are a fantastic organisation that supports families living with cystic fibrosis. They do a lot of fundraising to provide equipment, information and support networks.
Visit their online store to purchase products. They currently have gorgeous necklaces, which would be great for Mother’s Day. Funds go towards CF Western Australia, however, you can purchase things in the state related to you, just head to the relevant store.
Alternatively, you can donate in various methods here. You can donate to the entire organisation, or to the state relevant with you