Tag Archive | father

We are home…again!

I seem to get a lot of people who think Albany is in nothern WA...so here is a map!

We are home again from yet another trek to Princess Margaret Hospital for Children.

The young one had to have a follow-up bronchoscopy to make sure we have eradicated the Pseudomonas from when he was hospitalised with them back in August.

We left Wednesday morning on the 450km trip to Perth to be at the hospital for specialist appointments that afternoon.

When we arrived, we found clinic to be very quiet. Turned out the respiratory doctor we were due to see was away on maternity leave, and the replacement doctor was off sick, so they had cancelled respiratory appointments. But since we (and one other patient) had travelled considerable distance, they kept our appointments, and found us another respiratory doctor that was floating around.

You would think that since there was only a couple of us waiting for appointments, that we would be over and done with fairly quickly…but no. It took the usual amount of time and we didn’t walk out of the hospital until nearly 5pm. But back to the main story…

My son’s lungs apparently sound pretty good, which is good to hear considering he had a nasty cough that was starting to worry me!) but that is what they said when they discovered Pseudomonas the first time, so I’m not holding any stock in that assessment. But due to that cough, he has to start on Tobramycin nebulizers now that the bronchoscopy is finished and we are home (he isn’t allowed to have nebulizer meds for four weeks before a bronchoscopy as the drugs can affect the results) But everything basically rides on the results from the bronc.

The doctor has also agreed to put our daughter on six monthly visits now (YAAAAY) They are extremely confident now that she does not have CF, but because of her history of chronic coughs (she gets croup at least every one to two months, her latest bout of croup lasted about five weeks) they want to keep an eye on her for a couple of years. They are considering the possibility that she may have weak lung/throat muscles (something she should outgrow in the next few years) and that is why she snores while sleeping, and breathes so heavily when awake. We havent been able to get a result from a lung function test from her, but hopefully the next time she does one, she will be able to do it properly and can get reassessed then. They have also said that they will give us some help with her worrying eating habits (but that is a long subject suitable for another blog post) which is a relief.

Vitamin D...main source? The sun...

Back to my son though. Once finished with the respiratory doctor, we saw the gastroentologists. At the last clinic visit, my son had to have some blood work done to check his vitamin levels. It turns out he is very deficient in vitamin D, enough so that a “bit of time in the sun” wont be enough, and he has been prescribed a new medication, Cholecalciferol (or Bio-Logical Vitamin D3), to help boost levels. He will have to have blood work again in six months to see how his levels are going then.

After that, we went on to see the dietician. They were very happy to see that his weight has improved greatly, as the little porker has put on nearly a kilogram in the last three months!! But they had a little bit more “bad” news (I guess you could call it that), my son is also anaemic. Thankfully, he is only slightly anaemic. They aren’t worried enough to put him on iron tablets, but the main reason for that is because they are worried about the constipation side effect of the tablets. It’s a bit of a surprise that he is anaemic as he absolutely loves his meat. We can only try to add more leafy green veggies and eggs to his diet I guess. The dietician did say that it could be due to the fact that he has a dairy protein intolerance, as anaemia is something they see in people who don’t consume enough (or none at all) dairy. But they will keep an eye on it and will give him tablets when/if they become concerned.

Doesn't look like much fun, does it? 😦

A couple of days later, on Friday, the young on went in for his follow-up bronchoscopy. We still don’t know results yet, and we weren’t really given any indications of what his lungs looked like. We were kind of busy afterwards dealing with the aftermath of the anesthesia. Apparently the procedure didn’t go quite to plan, it sounds like he kept somewhat waking, or moving, during the procedure. He also didn’t wake very well, and especially didn’t like it when the nurses came near him. As only one parent can go in to a child in the first stage of recovery, my husband went this time. I could hear my son screaming in the corridor. I could tell he was having a rough time coming to again. When they walked out to go into second stage recovery, I noticed blood over my husband and son. Yep, my son has ripped the canula out of his hand and blood went squirting everywhere, apparently. He lost a fair bit of blood, but is doing ok.

Thankfully, it didn’t take long for him to be “awake” enough for us to leave, but we still had a rough night that night as he suffered spiking fevers and incoherence, something he seems to go through after having anesthesia these days. Two days on, his appetite is still suffering a bit, but he is happy and playful again, though nap times are probably a bit longer than usual still.

For now, we wait on the phone call from the CF team with the results from his bronchoscopy. I have to admit, I’m not confident that we have gotten rid of the Pseudomonas, but I’m trying not to think about it for now. At least we have plans in place should he have to back to hospital to have intravenous drugs for two weeks again.

Please keep your fingers crossed for us for good results!

Bella 🙂

Things I have learned since having children

All mother’s learn “tricks of the trade” as time goes on. I have called on the help of some of my mummy friends to come up with some little ideas for new, first time mums.

Keep a change of clothes for yourself  (and bub) in the car at all times.

Spares never go astray

I have lost track of how many times I had to run into  a clothing store when I was in town to buy a shirt because of one of the three embarrassing baby “P’s” (poop, pee or puke) Then there is the worry of breast milk leakage…yup…I have had the embarrassment of a wet circle around my chest in public, which resulted in bub being carried until a change of clothes or calling quits and heading home earlier than anticipated.

I have had some parents say that they forgot to bring baby clothes with them at some stage. Its seems obvious to take baby clothes in your change bag, but it can be forgotten with the “baby brain” we all suffer in those first few months (or years….)

 

Essentials for every handbag: wipes, band aids and stickers!

I used to (and still do!) keep a pack of wipes in our change bag, handbag (since the change bag didn’t come everywhere), and the glove compartment of the car. No matter where you are, or what you are doing, you should never get caught out, whether it’s a nappy change or wiping up sticky messes after ice cream at MacDonald’s.

For all scrapes and bruises

Band aids are always handy because they make everything better! A stubbed toe can feel better with a band aid, but then there also times when there may be blisters caused by shoes, or scraped knees falling over in car parks.

Don’t forget stickers, because any child can be bribed with the promise of stickers. I quite often use this piece of bribery to get the kids away from those blasted rides (you know the ones, the cars that bounce up and down, or trains that go round and round) that are always parked out the front of shops to drain parents of any coins that might be hiding in the depths of their purses.

Find a GP who will listen to you.

A doctor you trust is essential

Good doctors can be hard to come by. Find one who will take you seriously if you take your child in when your gut is telling you that they are ill. No-one knows a child better than its own mother. But you also want a doctor that isn’t afraid to tell you that the sniffles are just the sniffles and you need to relax. It’s a little contradictory, but you need to be able to trust your doctor to take you seriously and tell you the truth.

 

 

Sleep whenever you get the opportunity.

Sleep when the baby sleeps. No-one cares about the housework, catch up on it later. A dirty house is better than an axe-weilding maniac! Those who pass judgement probably havent had kids and aren’t worth the time…they will soon learn.

Sleep is your friend!

Call on family members. I bet they are more than willing to help out (Well…people going ga-ga over a baby can be helpful at times!)

Sleep as much as you can in hospital, it means that you will have more energy to deal with things when you get home, because I’m warning you now, the first night home is generally a nightmare (though it usually settles very quickly)

Depression isn’t weakness.

Never be afraid to ask for help!!

It happens to the best of us. It doesn’t mean that you don’t love your baby. It doesn’t mean that you aren’t doing a good job. Parenting is hard. Find someone who you can vent to…or write a blog (it certainly helps me!) and never be afraid to ask for help. It is normal for your moods to be all over the place for a few weeks after birth while your hormones settle. But if the feelings of sadness or hopelessness (amongst other symptoms) continue, see your doctor. Check out www.beyondblue.org.au for more information.

Don’t forget, fathers can get postnatal depression too!

No book has all the answers.

There is no such thing as a baby "Bible"

Some parents have huge expectations of how their baby is going to be once born. They aren’t going to have pacifier at all, organic cloth nappies only, and of course they are going to sleep straight through the night instantly. It’s these sort of people who experienced parents sit back and look at, giggling inside while thinking “Well you’re in for a wake up call!” I have met expecting mothers who have found a certain book and swear blind that they are going to follow every word and their baby will be perfect, only to be dismayed when their baby had other ideas.

Allow your child to have some time to work out a bit of a routine. You can slowly guide them towards one, but don’t expect instant results. If you make a decision on how to do something, then stick by your decision. Don’t allow yourself to get bullied by others to do things their way (for example, the breast vs. bottle debate I touched on recently) What works for others may not work for your family. Allow time to figure it out!

Run fast, run far!Now finally, I asked my husband for some tips for upcoming first-time dads, and what do you think his little pearl of wisdom was??

 “RUN!!!!”

Happy Father’s Day!

A quick shout out to all the deserving dads out there…. HAPPY FATHER’S DAY!!!!

I hope you all have a fantastic day. Hope you all get spoilt, get a chance to relax, claim the remote, have a drink or two and enjoy your day!

A special shout out to my own husband, who works long hours but still get time to be the best dad ever! Our kids absolutely idolize you!

 

Happy Father’s Day to my own Dad and father-in-law…I bet the two of you are having relaxing days also. We will have to catch up later on!

 

 

 

Have  great day y’all!

Bella 🙂